Ignite Creation Date:
2024-05-05 @ 12:01 PM
Last Modification Date:
2024-10-26 @ 9:19 AM
Study NCT ID:
NCT00217321
Status:
UNKNOWN
Last Update Posted:
2010-07-21
First Post:
2005-09-15
Brief Title:
Parkinsons Disease Registry of the Muhammad Ali Parkinson Center
Sponsor:
Muhammad Ali Parkinson Research Center
Organization:
Muhammad Ali Parkinson Research Center
Study Overview
Official Title:
Parkinsons Disease Registry
Status:
UNKNOWN
Status Verified Date:
2006-09
Last Known Status:
ACTIVE_NOT_RECRUITING
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
The purpose of the Parkinsons disease Registry is to develop a national and international database of persons with Parkinsons disease PD The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible
Objectives include
Assess current treatment approaches and develop best-practice guidelines
Track the functional abilities access to healthcare and cost of illness of people with PD over time
Drive the development of innovative research projects
Accelerate the process of informing patients of research projects for which they may be eligible
Objectives include
Assess current treatment approaches and develop best-practice guidelines
Track the functional abilities access to healthcare and cost of illness of people with PD over time
Drive the development of innovative research projects
Accelerate the process of informing patients of research projects for which they may be eligible
Detailed Description:
What do you need to know
Any individual diagnosed with PD is eligible to enroll
Participation in the registry is voluntary confidential and free of charge
Eligible participants will be notified about opportunities to participate in clinical trials though they are under no obligation to enter
Participants will need to complete an updated questionnaire every six months
Participants may also be asked to complete additional surveys for PD research projects
Any data provided will be used in scientific publications in summary form only
Participant names will not be released to anyone outside the Parkinsons disease Registry management team without written authorization nor will names be sold for advertising or fund-raising purposes
Any individual diagnosed with PD is eligible to enroll
Participation in the registry is voluntary confidential and free of charge
Eligible participants will be notified about opportunities to participate in clinical trials though they are under no obligation to enter
Participants will need to complete an updated questionnaire every six months
Participants may also be asked to complete additional surveys for PD research projects
Any data provided will be used in scientific publications in summary form only
Participant names will not be released to anyone outside the Parkinsons disease Registry management team without written authorization nor will names be sold for advertising or fund-raising purposes
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None