Ignite Creation Date:
2024-10-26 @ 3:40 PM
Last Modification Date:
2024-10-26 @ 3:40 PM
Study NCT ID:
NCT06605391
Status:
RECRUITING
Last Update Posted:
None
First Post:
2024-09-18
Brief Title:
Caregiving While Black LIVE
Sponsor:
None
Organization:
None
Study Overview
Official Title:
Caregiving While Black-LIVE Empowering Black Dementia Caregivers to Navigate Care
Status:
RECRUITING
Status Verified Date:
2024-09
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
No
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
This study will test the psychoeducation course Caregiving while Black - Learning In Vital Engagement LIVE among Black caregivers providing care to persons with dementia This course aims to enhance Black caregivers capacity to cope effectively with their caregiving role of navigating care and the world of healthcare in ways that take into consideration the social and cultural context of their unique life experiences
Detailed Description:
Black caregivers and their care recipients experience disparities in care have lower rates of formal service use and are generally under-treated More specifically disparities in healthcare quality include higher rates of missed or delayed dementia diagnoses among Black older adults and a lower likelihood of receiving dementia medication or care from a dementia specialist Notably disparities exist for caregivers of persons living with Alzheimers disease and persons living with dementia PLWD as well Black caregivers report more time spent in caregiving than do White caregivers and use less respite service Black caregivers also report increased difficulties navigating the healthcare system Further racial differences and disparities related to caregiving experiences exist at alarming rates for use of supportive services 33 vs 25 care hours 54 vs 39 and living below the federal poverty level 32 vs 12 among Black caregivers compared to White caregivers Black families faced with dementia Medicare beneficiaries incur 17 times more in healthcare cost and higher proportions of preventable hospitalizations than White families Among PLWD Black older adults account for nearly a third of preventable hospitalizations It should be noted that these disparities are not due to biological or genetic differences between racial or ethnic groups as race and ethnicity are social constructs Rather it is more likely due to lived experience and structural racism leading to disparities in social and structural determinants of health These amplified experiences highlight the importance of this proposal to further develop a course that addresses the cultural and practical reality of supporting a PLWD as a Black in America as Black caregivers desire better access to culturally relevant caregiving and self-care information One potential tool to mitigate the aforementioned health disparities is to offer an education tailored and responsive to the needs of Black caregivers This project responds to a compound gap in psychoeducation aimed at promoting caregiving mastery
This study will test the psychoeducation course Caregiving while Black - LIVE among Black caregivers providing care to persons with dementia The researchers will employ a mixed-methods pre-post no control design to gather formative and evaluative data from four cohorts 10 participants in each cohort of Black caregivers The course is self-paced and participants are asked to complete the course over an 8-week period
This study will test the psychoeducation course Caregiving while Black - LIVE among Black caregivers providing care to persons with dementia The researchers will employ a mixed-methods pre-post no control design to gather formative and evaluative data from four cohorts 10 participants in each cohort of Black caregivers The course is self-paced and participants are asked to complete the course over an 8-week period
Study Oversight
Has Oversight DMC:
None
Is a FDA Regulated Drug?:
None
Is a FDA Regulated Device?:
None
Is an Unapproved Device?:
None
Is a PPSD?:
None
Is a US Export?:
None
Is an FDA AA801 Violation?:
None