Ignite Creation Date:
2024-05-05 @ 10:00 AM
Last Modification Date:
2024-10-26 @ 9:04 AM
Study NCT ID:
NCT00004649
Status:
COMPLETED
Last Update Posted:
2005-06-24
First Post:
2000-02-24
Brief Title:
Study of the Natural History and Genotype-Phenotype Correlations of Hereditary Hemorrhagic Telangiectasia Patients
Sponsor:
National Center for Research Resources NCRR
Organization:
Office of Rare Diseases ORD
Study Overview
Official Title:
None
Status:
COMPLETED
Status Verified Date:
2001-12
Last Known Status:
None
Delayed Posting:
No
If Stopped, Why?:
Not Stopped
Has Expanded Access:
False
If Expanded Access, NCT#:
N/A
Has Expanded Access, NCT# Status:
N/A
Acronym:
None
Brief Summary:
OBJECTIVES I Collect data regarding the natural history of hereditary hemorrhagic telangiectasia HHT
II Establish genotype-phenotype correlations in HHT III Create a database of information for researchers throughout the world
II Establish genotype-phenotype correlations in HHT III Create a database of information for researchers throughout the world
Detailed Description:
PROTOCOL OUTLINE Patients complete a self-administered natural history questionnaire in a multiple choice format Questionnaire is completed by a population consisting of males and females of all ages and ethnic backgrounds
Data are collected and made available to all researchers
Data are collected and made available to all researchers
Study Oversight
Has Oversight DMC:
Is a FDA Regulated Drug?:
Is a FDA Regulated Device?:
Is an Unapproved Device?:
Is a PPSD?:
Is a US Export?:
Is an FDA AA801 Violation?:
Secondary IDs
| Secondary ID | Type | Domain | Link |
|---|---|---|---|
| UVT-650 | None | None | None |